Muscular Dystrophy NSW

Muscular Dystrophy NSW is NSW’s leading not-for-profit organisation dedicated to supporting people living with a neuromuscular condition and their families at every life stage.

For over 60 years, MDNSW have connected people across NSW living with neuromuscular conditions to the support programs they want, and the community they need.

MDNSW’s mission is to empower, connect and support the neuromuscular community and be an effective advocate for the neuromuscular community.

They achieve this by providing:

• A strong commitment to research into progressive treatments for neuromuscular conditions, raising funds to sponsor individual researchers and research institutions as well as partnering with local neuromuscular clinics and relevant bodies including the Australian Neuromuscular Disease Registry (ANMDR) to spread knowledge and raise awareness.
• Advocacy of causes important to the neuromuscular community including accessibility, NDIS reform and inclusion.
• Information, support coordination and peer support.
• Events, camps, and retreats that bring people in the community together to share, learn from and support each other.

Projects and discoveries underway

Supporting cutting-edge research to improve the lives of individuals living with neuromuscular conditions. HM1 will support two full-time postgraduate scholarships, offering financial support to young talent. This initiative aims to develop new treatments and improve patient outcomes.